Wednesday 20 April 2011

A trip to haematology daycare

Last night we went to sleep late as we watched Godfather II - a great film! But we woke a little sleep-deprived.

Today I had to go to daycare to see Gemma, the haematology nurse specialist, to discuss the timings for my stay at home and next round of care, and afterwards to have another bone marrow biopsy. The biopsy was scheduled for noon, so we set off early, parked in Rose's normal car park, and had an early lunch in Pret a Manger.

Before speaking to Gemma, a nurse took some blood. My counts have all risen nicely, especially my platelets which are 62.

The discussion with Gemma was quite up-beat. I will get 2 more weeks at home, my tretatment will recommence on Wednesday 4th May. I suspect the extra week I am getting is because of the extra public holiday for the royal wedding. The next cycle of chemo will be done in Ambicare (with me staying in the hotel), and is done in two bursts at day 1 and day 15. In between, I may get some more home time too. Furthermore, I should not go neutropenic during the cycle, so there is a far lower risk of infection. All this was very positive; the only downer is that I still have no clear idea of when the transplant might happen.

The bone marrow biopsy was not such a good story. It is the third one I have had and was very painful. I have had one each side now; today was the second one on the right side, and each time is worse than the last. Next time I will ask to be sedated ... it was that bad.

After a 45 minute wait for some more drugs, we came home, and I sat in the garden enjoyng the balmy weather. A little later the doorbell rang and Pete was there, popping round on his way home from work; a very pleasant surprise, and we had a nice chat.

After Pete left we had dinner (for a change I will spare you the details, but it was delicious).

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