This day (day 15 of the treatment cycle of 30 days), is a long day, just as day 1 was a fortnight ago. I arrived at 8am and it is now 5:30pm - I expect to leave at 6:30.
I did not sleep well last night, and so I am pretty tired now. I will be hooked up to fluids in the backpack for the next three days, and so will not sleep well for while (with all the weeing that is required). I still feel a bit yukky, the anti-sickness is still not properly sorted. But I am fooling myself that things are improving ...
I got lots of information today from my doctor, pharmacist and also the transplant nurse specialist, but I forgot most of it! If it is not written down it is not good for me in my current state. The chat about the transplant was interesting, and I do remember this much: she said that the three months post transplant are the worst, worse than the immediate aftermath in hospital (which lasts about 6 weeks). I am trying to focus on this time next year, when I will hopefully be pretty fit, but it is hard to see past the immediate future! We get to see the consultant on June 2nd, and this is when we will get to know the probabilities of survival given my exact condition and donor status. Generically the chances are 75% to survive the transplant.
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