The doctors have decided to discharge me tomorrow! So tonight's the end of the second phase of the transplant. Transport is booked for 10am tomorrow, and I will be back in clinic as an outpatient starting on Monday.
Rose came this morning, and we went for a walk to the cafe for a coffee and a cake. The weather was foul, very wet, but still it was worth it. Rose cannot come tomorrow as she has a golf engagement, so I will be travelling home alone.
I have been very tired all day, and spent most of the day dozing. I think this is how the next few weeks will be at home, but at least I should be able to eat better.
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Thursday, 7 July 2011
Wednesday, 6 July 2011
T+13: A quiet day
I slept poorly last night, but at least I managed to shed a couple of kilos of fluid. Time is dragging out very slowly for me now.
This morning I went out by myself to the shops, and got some more water, and bizarrely some pickled cucumbers as an impulse buy. I watched the TV for a bit, and then just dozed until lunch. I am still not comfortable, but much better than a few days ago. Lunch was terrible! This afternoon I tried to watch the cricket, but reception over the 3G network is poor today, so I have given up to write this blog instead.
Rose is playing golf this this afternoon, so I have been all alone today. The doctors are still very pleased with my progress, and are considering discharging me sometime this week. I have my fingers crossed.
Dinner was also terrible. I can't seem to eat savoury food in the hospital. I had yoghurt and ice cream. Another long night awaits ...
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This morning I went out by myself to the shops, and got some more water, and bizarrely some pickled cucumbers as an impulse buy. I watched the TV for a bit, and then just dozed until lunch. I am still not comfortable, but much better than a few days ago. Lunch was terrible! This afternoon I tried to watch the cricket, but reception over the 3G network is poor today, so I have given up to write this blog instead.
Rose is playing golf this this afternoon, so I have been all alone today. The doctors are still very pleased with my progress, and are considering discharging me sometime this week. I have my fingers crossed.
Dinner was also terrible. I can't seem to eat savoury food in the hospital. I had yoghurt and ice cream. Another long night awaits ...
- Posted using BlogPress from my iPad
Tuesday, 5 July 2011
T+12: some relief at last
I slept badly, still totally bloated and not much sign of relief.
The doctors came and said how pleased they were at my progress! But I felt awful. It'll get better they said, same as the last few days. They even talked about sending me home, but were vague. All my meds have moved from IV to oral at any rate.
Rose came to visit, and we managed to exit the hospital and go for a coffee at the cafe over the road. It was quite hard work, but everyone says I need to exercise somehow.
I have spent the afternoon dozing, and somehow the magic has started and I have begun to wee more than I am drinking, I.e. Get rid of the excess fluid. I hope,it continues! I am still very tired, and don't have much appetite, but shedding the excess fluid is my top priority.
- Posted using BlogPress from my iPad
The doctors came and said how pleased they were at my progress! But I felt awful. It'll get better they said, same as the last few days. They even talked about sending me home, but were vague. All my meds have moved from IV to oral at any rate.
Rose came to visit, and we managed to exit the hospital and go for a coffee at the cafe over the road. It was quite hard work, but everyone says I need to exercise somehow.
I have spent the afternoon dozing, and somehow the magic has started and I have begun to wee more than I am drinking, I.e. Get rid of the excess fluid. I hope,it continues! I am still very tired, and don't have much appetite, but shedding the excess fluid is my top priority.
- Posted using BlogPress from my iPad
T+11: Yesterday
I am swollen beyond belief, and cannot do much. I am continually uncomfortable from the pressure of all the fluid. My vital signs are OK, and the doctors say it is a awaiting game.
Blogging may be haphazard for a few days.
- Posted using BlogPress from my iPad
Blogging may be haphazard for a few days.
- Posted using BlogPress from my iPad
Sunday, 3 July 2011
T+10: it feels like a transitional phase
My hands and eyes are still not good, and my body is still retaining fluid, the diarrhoea frequency has dropped to manageable levels so I am on on quite a lot fewer meds than before. Most of the symptoms are now likely to be from gvh rather than the conditioning chemo, so may require different treatment regimes.
The nausea continues to bubble under, preventing me from eating much sold food.
The doctor says things are all going as well as can be expected. After a few days the engraft will be complete, and maybe we can think about getting rid of the fluid and controlling the sickness.
Rose visited today which was much appreciated.
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The nausea continues to bubble under, preventing me from eating much sold food.
The doctor says things are all going as well as can be expected. After a few days the engraft will be complete, and maybe we can think about getting rid of the fluid and controlling the sickness.
Rose visited today which was much appreciated.
- Posted using BlogPress from my iPad
Saturday, 2 July 2011
T+9: Some improvements
I did no sleep well again, and awoke at about 6:30. Rose came to visit at about 10:00 and we chatted and did the crossword some more.
Rose noticed that I have a rash on my right foot, which I do. The doctor came at 12 and examined it. The "new" rash did not concern him; probably as a result of a pool of platelets i'd had the previous day. But he did look more closely on the palms sand soles and prescribed a steroid-baseed topical cream. Thus far, and it is early days, it looks promising. I still cannot type for toffee :(
The cause of the painful rash is probably gvh. This is very good as it confirms that the graft cells and working. My neutrophil level jumped from 0.1 to over 1.0 today! I have been told the these counts should go up and and down a bit until the donor cells have all engrafted on my bone marrow.
- Posted using BlogPress from my iPad
Rose noticed that I have a rash on my right foot, which I do. The doctor came at 12 and examined it. The "new" rash did not concern him; probably as a result of a pool of platelets i'd had the previous day. But he did look more closely on the palms sand soles and prescribed a steroid-baseed topical cream. Thus far, and it is early days, it looks promising. I still cannot type for toffee :(
The cause of the painful rash is probably gvh. This is very good as it confirms that the graft cells and working. My neutrophil level jumped from 0.1 to over 1.0 today! I have been told the these counts should go up and and down a bit until the donor cells have all engrafted on my bone marrow.
- Posted using BlogPress from my iPad
Friday, 1 July 2011
T+8: Still sleepless, painful hands and feet
The oedema and the painful rash on my hands render them almost useless. It took me over five minutes to write that.
The diarrhoea is controlled with laperamide and Buscopan, but the oedema continues.they gave a small tablet which is supposed to reduce it.
My worst problem right now is lack of sleep. They have changed my drug regime to try and help it.
With the difficulty typing, and the lack of sleep, I may miss some posts. I will try to write a few words if I can.
- Posted using BlogPress from my iPad
The diarrhoea is controlled with laperamide and Buscopan, but the oedema continues.they gave a small tablet which is supposed to reduce it.
My worst problem right now is lack of sleep. They have changed my drug regime to try and help it.
With the difficulty typing, and the lack of sleep, I may miss some posts. I will try to write a few words if I can.
- Posted using BlogPress from my iPad
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