The religious season is upon us, and just as the early Christians managed to cleverly weave the Jewish legend of the Easter bunny and the Pagan legend of the sacrificial lamb into their myth, so I find myself weaving these well tried and tested tales into my blog ...
As I wait for news of my blood counts, by sending out a rabbit from my ark to see if there is any news, I begin to doubt the wisdom of using the cuddly bunny for this purpose; despite their prodigious breeding rate, the demand for chocolate coated bunnies is putting an unsustainable pressure on their numbers. Plus, every day my blood counts are flat as a pancake (a bit like the lake in which my mate Nora told me to build the ark).
Anyway ...
Rose came to visit as usual today, and Marilyn joined us for an hour or two at lunch. A pleasant time was had by all.
Today I also went for a heart ultrasound, where they use an ultrasound probe to check for heart abnormalities. I think the results were negative; I will find out tomorrow. I will also discuss the possibility of a course of GCSF, the growth stimulant for stem cells.
... now where did that sacrificial lamb fit in? I think it was T16, bed 39:)
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A journal of my experiences with adult acute lymphoblastic leukaemia, treated by UCH London.
Friday, 8 April 2011
T16 visits
I forgot to say, but visitors are welcome - bed 39 (not 36 as previously). Just call first to be sure.
Let's play catch-up
On Sunday afternoon my headaches got worse. These are not like normal headaches, more like someone stabbing you with knife in the side of the head! By evening all I wanted to do was curl up into a ball and die.
Things went from bad to worse on Monday. Rose put Brandy in the cattery in preparation for going to France. I was very uncommunicative and unresponsive.
During the evening of Monday things got worse. Rose tried to phone but I did not want to speak to anyone. I just lay curled up and dying. Just before midnight (and unbeknownst to me, clearly), my nurse called Rose to say they sent me for head CT because they suspected I might have a bleed on the brain!
Needless to say, Rose was quite freaked! She decided not to got to France! Rose called back at 2am and the preliminary report was negative.
The following day, Tuesday, Rose came in early. I was still very uncommunicative. The doctors ordered an MRI scan, and a lumbar puncture. They took me for the scan at about 12pm, and this is when I started to snap out of it. Rose left at 3pm to get Brandy back from the cattery, I had the LP, and after the enforced lie-down I felt a lot better. In the evening I phoned Rose to tell her I was feeling a bit better.
Wednesday dawned, and I was in much better spirits. Rose came in very early again, and Marilyn also visited at lunchtime. It seems like I am now over the worst of things.
The doctors don't really know why it happened, but now I am once again hoping my blood counts will recover so I can go home!
I have subscribed to Sky mobile TV so that I can watch the Masters. It works pretty well, combined with my new rolling 1 month contract for 10gig data!
Many thanks to Marilyn and Yvonne for helping Rose get through this, as well as all the other people who sent messages of support.
- Posted using BlogPress from my iPad
Things went from bad to worse on Monday. Rose put Brandy in the cattery in preparation for going to France. I was very uncommunicative and unresponsive.
During the evening of Monday things got worse. Rose tried to phone but I did not want to speak to anyone. I just lay curled up and dying. Just before midnight (and unbeknownst to me, clearly), my nurse called Rose to say they sent me for head CT because they suspected I might have a bleed on the brain!
Needless to say, Rose was quite freaked! She decided not to got to France! Rose called back at 2am and the preliminary report was negative.
The following day, Tuesday, Rose came in early. I was still very uncommunicative. The doctors ordered an MRI scan, and a lumbar puncture. They took me for the scan at about 12pm, and this is when I started to snap out of it. Rose left at 3pm to get Brandy back from the cattery, I had the LP, and after the enforced lie-down I felt a lot better. In the evening I phoned Rose to tell her I was feeling a bit better.
Wednesday dawned, and I was in much better spirits. Rose came in very early again, and Marilyn also visited at lunchtime. It seems like I am now over the worst of things.
The doctors don't really know why it happened, but now I am once again hoping my blood counts will recover so I can go home!
I have subscribed to Sky mobile TV so that I can watch the Masters. It works pretty well, combined with my new rolling 1 month contract for 10gig data!
Many thanks to Marilyn and Yvonne for helping Rose get through this, as well as all the other people who sent messages of support.
- Posted using BlogPress from my iPad
Wednesday, 6 April 2011
Close, but no cigar
It has been a while since I managed to write something here; I have been in a pretty bad way for a few days.
After Jeremy and Diane left, things went downhill quite rapidly. I became very sleepy and listless. Rose had been planning to fly to France on Tuesday to make arrangements for managing the pool. On Monday this still seemed viable, but my general health and listlessness were becoming a problem. I was even unable to answer my phone.
Today things are improved. I will catch up when I can.
- Posted using BlogPress from my iPad
After Jeremy and Diane left, things went downhill quite rapidly. I became very sleepy and listless. Rose had been planning to fly to France on Tuesday to make arrangements for managing the pool. On Monday this still seemed viable, but my general health and listlessness were becoming a problem. I was even unable to answer my phone.
Today things are improved. I will catch up when I can.
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Monday, 4 April 2011
A day of mixed fortunes
I did not feel too bad this morning. Jeremy and Diane visited but I rapidly went downhill and had a pretty torrid day. Only now am I able write this
short post.
Each new day brings new challenges. How I wish it did not!
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short post.
Each new day brings new challenges. How I wish it did not!
- Posted using BlogPress from my iPad
Saturday, 2 April 2011
Fungal infection of the chest
Today they sent me for a chest CT and it showed positive for a fungal infection. They immediately treated me for it, and I will get a daily dose of fungicide.
My temperature spiked again this evening, so they just took more blood cultures. To be honest, I can barely keep up, as all I do is sleep all day, and I suspect all night. This post is a real effort.
I am just surviving ...
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My temperature spiked again this evening, so they just took more blood cultures. To be honest, I can barely keep up, as all I do is sleep all day, and I suspect all night. This post is a real effort.
I am just surviving ...
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A rough day
Sorry for the late post, it was a rough day. I only just managed to do something other than sleep, or fail to sleep.
Nothing new, just a bit of a stalemate with the infection. I will prevail, but it will take longer than I hoped.
- Posted using BlogPress from my iPad
Nothing new, just a bit of a stalemate with the infection. I will prevail, but it will take longer than I hoped.
- Posted using BlogPress from my iPad
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